The ask
- For the user to be able to easily see on the search results page whether there are any restrictions on the use of the dataset. If there was a way certain badges could be used for different use permissions as per the TCE that would be great
- To have a filter to be able to identify only those datasets that can be used for industry etc.
- For the dataset description page to include a new card/section for data use permission/limitation - probably more detail than on the search results page
In order to help Industry to more easily health research data that they’re able to use, we need to surface “data use limitation” for datasets through the IG UI. I’ve found it explicitly mentioned as a key recommendation from the The Association of the British Pharmaceutical Industry:
It is essential that there is clarity on the availability of health data in the UK to commercial bodies and on the uses to which they can be put in medicines development. The quality of the data and processes for accessing the data must be clear. This must be supported by appropriate governance, standards and regulations and a suitably skilled bioinformatics workforce.
We’ve already got the data quality and data access angles covered, so it would be great to complete the triple and help pharma companies easily find the datasets that they’re allowed to use.
Data use limitation is already in the schema with a reference to this ontology https://www.ebi.ac.uk/ols/ontologies/duo/terms?iri=http%3A%2F%2Fpurl.obolibrary.org%2Fobo%2FDUO_0000001 There are a lot of different categories though so we may need to think about how we classify or group them.
Hope that makes sense, if not, give me a shout. Richard E