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This is an open space to discuss health research topics, feedback on the Gateway functionality and comment on resources such as datasets. Everyone is welcome to join existing discussions or start a new topic.

Watch our Data Access and Discovery Webinar on Data Use Registers

Events
#1

We held our first Data Access and Discover webinar last week.

@nada.karrar (HDR UK) spoke about our work so far on developing a set of standards for data use registers to help improve transparency in health data research. We also heard from two guest speakers Angela Coulter (Chair of HDR UK Public Advisory Board) and Victoria Yorke-Edwards (Research Fellow at MRC Clinical Trials Unit UCL) both of whom were part of the community that helped develop our recommended standards for data use registers.

Please post any questions not covered in the webinar’s Q&A below - simply login or sign up and hit the blue reply button. Thanks!

#2

Data-access-and-discovery-event-data-use-registers-QA.pdf (171.7 KB)

Access-and-Discovery_Feb_2022_slides.pdf (2.0 MB)

Additional resources :arrow_up: :arrow_up:

Q&A
Here’s all the questions we didn’t have time to cover during the webinar, including what to do with negative or null research outputs, how data use standards may help to identify underserved areas of research, and the concept of an end date to help improve the public visibility of research outputs. Click on the link above to learn more!

If you have a question about data use registers not answered in the video or document, your are welcome to share it here by replying to this thread - you need to be logged in to do so - and one of our team will get back to you as soon as we can.

Slides
Please also find a link to the webinar slides. Again, any questions, pop them in a reply message below.